tag:blogger.com,1999:blog-8906103054375217984.post6340291250377897715..comments2023-05-15T07:57:12.616-07:00Comments on ALS With Courage: "Look Away, I'm Hideous"Nadine Sandshttp://www.blogger.com/profile/12921272738642015015noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-8906103054375217984.post-58599020818891642432011-09-06T20:21:51.438-07:002011-09-06T20:21:51.438-07:00I really enjoy reading your blog Nadine, great wor...I really enjoy reading your blog Nadine, great work. I'll be a dedicated follower. All the best, thinking of you often! Love & Hugs xoxoElisabethhttps://www.blogger.com/profile/13072962373123832431noreply@blogger.comtag:blogger.com,1999:blog-8906103054375217984.post-26543109971025842942011-09-06T16:17:01.659-07:002011-09-06T16:17:01.659-07:00I appreciate this blog and will be a regular reade...I appreciate this blog and will be a regular reader!!! <br />I hope you don't mind me adding an experience I had last month. I was very privilaged to hear Augie Nieto's wife speak at canfitpro conference in Toronto. Not sure if you know about Augie, but he (born Augustine L. Nieto II in 1958) is the founder and retired chief executive of Life Fitness. In March 2005, Augie was diagnosed with amyotrophic lateral sclerosis. He is noted for fighting against ALS by creating "Augie's Quest", which he started by teaming with the Muscular Dystrophy Association after his diagnosis. "Augie's Quest" has raised over $15 million dollars in funds for research into the disease.<br /><br />I was touched by the film they played of him from his home. His words (from his wife) were so inspiring. She said he has done more and lived more since having the disease. <br />I was inspired and support this "phantom disease" as it was called. <br />His goal is to find a way to make ALS a livable chronic disease. With the fundraising efforts and the telethon......more $$$$ are being raised.<br />http://online.wsj.com/public/article/SB116485210886636490-g_gcL2bGWgX5YAD_z_rPprirc4o_20061208.html?mod=blogs<br /><br />the link above is about Augie<br /><br />take good care and my support is here!!kimbusshttps://www.blogger.com/profile/11178734414688047128noreply@blogger.com