Thursday, 28 August 2014

Ice Bucket List - by Mike Sands

In the Christmas movie Elf, Santa Claus is seen stranded in Central Park, New York. The motor on his sleigh breaks down and Buddy the elf attempts to fix it. As Buddy works on the sleigh, Santa explains to Buddy that in the good old days he would never have this problem because his sleigh was powered by the spirit of Christmas. 

Buddy’s girlfriend convinces a crowd to join her in singing Christmas carols. The group’s singing is broadcasted nationwide and soon everyone is singing, which raises the spirit of christmas to new heights. Santa’s sleigh is soon seen soaring in the sky.

I had my first symptoms of ALS four years ago this month. Over the past four years I have lost the ability to walk, talk, move most of my body and swallow properly; in essence every muscle in my body has stopped working or is on it’s way to that result. 

It’s understandable for anyone in these circumstances to be in low spirits. As I experience my body deteriorating on a daily basis I look for things to raise my spirits and the recent ALS Ice Bucket Challenge has done this. The money raised is great but what’s even more important is that the challenge is a sign that society is in our corner, ready to fight this disease with us arm in arm. 

Right now with my elevated spirits, I think I could guide Santa’s sleigh clear around the world.

It took Mike a few day to write this blog post...Ice Buck List. Below are pictures of him working on the piece, one letter at a time on his communication device, the DynaVox. His neck muscles don't last long, so his window of time to write is very limited. 

Mike's blog post's Fried Chicken Bucket List, My "R" Rated Blog and Hawaii 5-Old are the most read posts on ALS With Courage. My favourite is Ahoy Matey...and now this one! Check them out!






1 comment:

  1. I recently published my article on newly researched rainforest medicinal plants and their potential for reversing the progression of ALS, Alzheimer's and other neurodegenerative diseases. It can be found at:


    http://ayahuascatreatment.wordpress.com/2014/09/01/ayahuasca-ethnobotanical-medicine-for-treatment-of-als/


    It is the culmination of several years work, having studied ethnobotanical medicine in the search for something viable. Hopefully, you will find it an important topic.

    I wish you a great day, and that you share this information, should you find it interesting.

    At ease, soldier. Regards,
    Daniel Gustafsson, Sweden.

    ReplyDelete